Haemophilia Utilization Group Study - Part Va (HUGS Va): design, methods and baseline data
نویسندگان
چکیده
منابع مشابه
Haemophilia utilization group study - Part Va (HUGS Va): design, methods and baseline data.
To describe the study design, procedures and baseline characteristics of the Haemophilia Utilization Group Study - Part Va (HUGS Va), a US multi-center observational study evaluating the cost of care and burden of illness in persons with factor VIII deficiency. Patients with factor VIII level ≤ 30%, age 2-64 years, receiving treatment at one of six federally supported haemophilia treatment cent...
متن کاملQuality of life in haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va).
This study describes health-related quality of life (HRQoL) of persons with haemophilia A in the United States (US) and determines associations between self-reported joint pain, motion limitation and clinically evaluated joint range of motion (ROM), and between HRQoL and ROM. As part of a 2-year cohort study, we collected baseline HRQoL using the SF-12 (adults) and PedsQL (children), along with...
متن کاملUtilization of care in haemophilia: a resource-based method for cost analysis from the Haemophilia Utilization Group Study (HUGS).
The Haemophilia Utilization Group Study (HUGS) was created 10 years ago to examine the annual utilization and cost of haemophilia-related healthcare services. Retrospective chart reviews for 336 patients with haemophilia A receiving treatment in one of five comprehensive haemophilia treatment centres (HTCs) during 1995 were completed through interview of the provider. This method provided adequ...
متن کاملThe Hemophilia Utilization Group Study (HUGS): determinants of costs of care in persons with haemophilia A.
OBJECTIVE The main objective of this study was to examine factors associated with utilization and costs for persons with haemophilia. STUDY DESIGN Utilization data and patient characteristics were collected through medical record review of 336 patients receiving treatment for at least 90% of their haemophilia care at one of five comprehensive haemophilia treatment centres in California. PRI...
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6. Meyer RA, Kaplan S: Echocardiography in the diagnosis of hypoplasia of the left or right ventricles in the neonate. Circulation 46: 55, 1972 7. Assad-Morell JL, Tajik AJ, Giuliani ER: Echocardiographic analysis of the ventricular septum. Prog Cardiovasc Dis 17: 219, 1974 8. Seward JB, Tajik AJ, Hagler DJ, Ritter DG: Preoperative and postoperative echocardiographic observations in common vent...
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ژورنال
عنوان ژورنال: Haemophilia
سال: 2011
ISSN: 1351-8216
DOI: 10.1111/j.1365-2516.2011.02595.x